Georgia's Entry

March 06, 2020

Hello,

 

I hope you’re all well, I’ve turned 20 since I last wrote an entry. Turning 20 was a pretty big milestone as I’m no longer a teenager and on reflection, I have a few thoughts that I wanted to share with yourselves. As I’m getting older, I’m becoming more aware of the effects of my disability and therefore I have more of an understanding of what is classed as ‘normal’ for a person of my age…

 

 I’ve accepted the fact that I’ll never be totally independent and I’m fine with this I really, I am. But what will be my independent? I’ve previously started a new role-emerging occupational therapy placement and it’s been great for my confidence because a role-emerging placements works slightly different to a traditional placement and therefore, I don’t have my supervisor peaking over my shoulder all day every day, which I’m enjoying. On this placement, I am feeling a lot more independent - I mean of course I have to keep my supervisor updated with what I’m doing but most of the time it’s just me and I’m quite liking the control as it’s something that I’ve never experienced before.

 

Over the years, of course, my independence has improved for example I don’t need help putting my shoes on anymore and I know that I’m going to get more independence when I pass my driving test. But when I pass my driving test will that be it, will I have achieved my maximum independence? I mean, I only feel more independent on this placement because it is not as physically demanding as the ones I’ve done previously. If I get another physically demanding placement will my independence and confidence decrease?

When I move out and become a homeowner, I guess I’ll feel more independent. But this will be financial independence. I’ll still need someone to put my jewellery on and cut up my meal. Which is fine by me- 20 years of it, it no longer bothers me.

 

But, will going to work and asking someone to do anything physically demanding be my independent? 

 

I don’t really know what my point is as you can tell by the multiple questions in this post.  Whatever my ‘independence’ is I’ll be ok with it - I mean this time 3 years ago I didn’t think I’d be able to drive so who knows what the future holds and you’ve got to be optimistic. But I also need to be realistic with myself, I’m never going to be able to live totally on my own or be the greatest at manual handling. This is completely fine. I’d be lying if I said it’s something that doesn’t cross my mind in terms of future relationships I mean, imagine, going on a blind dinner date and then having to ask them to cut my food up - I hope that this never happens. I guess my point is that I don’t have to be totally independent to be satisfied with my independence. I know I have the potential to become more independent in terms of driving and my career, but I probably won’t gain a lot more independence in terms of my self-care occupations. But I’m happy with this and I know it won’t be much longer until I achieve my own state of independence. However, it can be hard to picture what this will look like as who knows what physical demands and unexpected battles, I may face…

 

Thank you for reading,
Georgia 
@GeorgiaVineOT

Gavin's Entry

February 21, 2020

Hi everyone,

 

Happy new year! I can't believe we're now in 2020.

 

If you follow me on social media, you may have seen the odd video of me skiing. Other than that, I haven't really posted much about my skiing. After seeing the videos, a few people have asked me about it. So for this blog, I thought I would explain how I ski and the progress I've made.

Like RaceRunning, I got involved in skiing by chance. I first got the opportunity to try it whilst on a school residential trip during my last year of primary school. Skiing just happened to be one of the activities on offer.

 

While I was apprehensive about trying it, I was keen to give it a go. Even though I had some reservations (mainly because I had no idea whether I could actually do it without skiing into everyone and everything), I agreed to a taster session with a disability instructor that my school had arranged. To my surprise, I stayed upright for most of the session. I had so much fun. So much so, I wanted to have another go when I returned home.

 

From there, I started going for lessons at my local indoor ski slope. To begin with, it was a bit scary because it was my first time on real snow as it was a dry ski slope for the taster session. I wasn't very good. Also I fell numerous times (which didn't help!) but once I became more confident on snow, I remembered how much fun it was and I was able to progress to gain more independence.

 

I ski standing up. I was given the option of whether I wanted to stand or sit to ski. I chose standing as I felt I was able to do so however there is the option to sit ski if that is more suitable for you depending on your disability. Although I ski standing up, there is some equipment I need to enable me to ski.To begin with, reins were attached to my skis to allow my instructor to guide me down the slope whilst I gained confidence. I still could control my turns but the reins gave me the reassurance that if I got into trouble, which I frequently did, my instructor could take over and guide me back to control. I also have links which joins the front of my skis together to help me make a snow plough shape. Then there's the spacer bar which I use for going up the poma lift. This goes under my boots and keeps my skis parallel as I go up the poma lift. Finally, I use outriggers which are crutches with mini skis on the bottom of them. I didn't use outriggers when I first started but I tried them once and found they really helped balance me and made a massive difference to my skiing.

 

Gradually, I have been able to be not so reliant on the reins to guide me down the slope. If the snow is really good, I am able to ski without the links that holds the front of my skis together which I know is a scary thought but I have managed to do it a few times.When I first started, I never thought I would get to that stage.

 

It has become more difficult to ski as my training has intensified. Skiing compliments my winter training well: my core and balance has got much stronger as a result. However, I have to be careful that I don't injure myself and we take as many steps as possible to minimise those risks.

Skiing was never a sport I ever thought about trying. If I hadn't had the opportunity to try skiing on the school residential trip, I probably wouldn't have discovered it was a sport I could do. I'm really glad I did though!

 

If you are interested in trying skiing and live nearby a slope, please get in touch with Disability Snowsport UK (DSUK) for more info.

Abbie's Entry

February 07, 2020

Firstly a Happy New Year to all readers. Into the 20's and a Paralympic year!

 

I had a really busy final quarter to round off the year. I had decided that I wanted to create a range of crafted gift items to be sold at Christmas Craft Fayres in aid of the Dame Vera Lynn Children’s Charity for whom I am an Ambassador.

 

Imagine Father Christmas’s Workshop and you will have a pretty good idea of what we looked like as my PA's and even my Grandparents all got involved in making and wrapping.

 

My Dad supported me in the second Fayre and had some really great ideas about visual merchandising which has inspired me to look at doing some more Fayres in the Spring and Summer.  He also suggested that the school children and their parents would be inspired to buy from a Paralympian so I wore a bit of kit!

  

 

I juggled the Fayres with my usual training commitments and traditional run up to Christmas with chutney making.

 

With my bedroom mural completed by local artist Dean Rush I have started to add my own embellishment giving it my own stamp by putting on some more Disney and Harry Potter characters.  It has been such a great project to be involved with.  I have really enjoyed sourcing bedding, lights and soft furnishings and have definitely got the bug with my guest and PA room in my sights for decorating projects this year.

 

'Work hard, play hard' is definitely my motto so I have been thrilled to have had the opportunity to be involved with the design and install of a new chill out sensory space at home. I worked with Chloe at Sensory Guru who has delivered on taking the same equipment that you would find at Dame Vera Lynn’s Children’s Charity and putting an adult spin on it to create a gorgeous sanctuary.  It’s my safe space to be alone and chill with lights, bubble tubes, mood lighting, gentle music and visuals but it is also a place to invite my mates, play Wii or snuggle for a film.

 

I am so grateful that everyone bought into the concept.  Private space has been a virtual impossibility for me up to this point.  PA's are always around me – eating, drinking, personal care – even a bath I am always monitored – even asleep there is a monitor.  So, this private space that I can access alone, that I can shut the door on the world means everything to me.

 

With Fayres done, the mural in my bedroom complete and the Sensory Room down to snagging I was more than ready to let my hair down and party.  I did just that at the Mamma Mia Party which was the best Birthday present from my Grandparents and Uncles and Auntie.  It may have been a chilly December night at the O2 but inside were at a Greek taverna boogying as Dancing Queens. It was absolutely brilliant and if you get the chance to go, you must.

 

 

From Mamma Mia to Oh Mumma with a night out to see Magic Mike at the Hippodrome.  The Show was fantastic but access was a nightmare with broken lifts and no ramps.

 

Christmas was really special this year with my paternal family coming to have a pre Christmas meal as close to the day as possible on the 23rd December.  I was really pleased with a couple of new recipes an Aubergine Nut Roast and a Sprout Gratin.  I followed this with a showstopper trifle and chocolate roulade.   By early afternoon on Christmas Eve I finally shut the doors to the outside world and my parents and I enjoyed a couple of days with the finest steaks, seafood and cheeses – all my favourite things.

 

We celebrated New Year with friends and this was closely followed by my first photography exhibition which was held at a local microbrewery.

  

 I am straight back into training but my work as an Ambassador continues.  I was deeply honoured that my Parents and I were invited to the Royal Albert Hall to see a new portrait of Dame Vera Lynn unveiled in collaboration with the Royal Mint.  A wonderful afternoon which was concluded in such style with Britain’s Got Talent winner Colin Thackery.

 

I have already got my eye on a couple of dates for Friday fun down at the charity and I have just booked the first Summer Fayre.  Another of my favourite sayings is ‘Seize the Day’ or my version ‘You snooze you lose’  that early bird gets jobs done whether it is training, photography homework or booking your Summer Fayre to ensure you get the best pitch!

Georgia's Entry - 2019 Round Up

December 30, 2019

As I sit here writing this blog there is 4 days of 2019 left, and what a year 2019 has been. Where do I begin? This year I have achieved a lot in terms of blogging, and I have got many memories with CP Teens. 

First let’s talk about becoming an ambassador for CP Teens in June, this has got to be one of my best achievements this year I have been wanting to become an ambassador for CP Teens for a while and I did not think that I would become one in 2019. But here we are 6 months in, and I’m absolutely loving it! CP Teens has been a big part of my life this year and I honestly believe that they have helped me to become the person I am today who isn’t phased by her disability in the slightest. I’ve always been up for any challenge that comes alongside my disability and have never been negative about it, but this year has made me realise that my disability is the best part of me as without it I wouldn’t have had half as many amazing memories that I’ve had throughout 2019. This year I have been on many CP Teens events such as bowling, the sponsored wobble and let’s not forget the ball! From these events I have met new people and made new friends who I know will be friends for life! 

I have also had a crazy year with my own blog Not So Terrible Palsy that I started in January, a year on and I cannot believe the opportunities that it has already given me. I did not think a year later that people would still be reading my material I’m still taken back every time someone leaves a positive comment on my blog. I still have a long way to go with my blog, but I like where it’s heading! 2020 is going to be a big year for me and my blog as I have my first conference coming up in June- I’m feeling very nervous but I can’t wait for the year ahead I would have never have dreamed that I’d be in this position when I started my blog at the beginning of 2019. Just before Christmas I had a few meetings to discuss my plans for the conference and other projects that I’m working on (that will be released in February) and I’m just in ore that I’m in the position that I’m in. 

 

I also have events with CP Teens 2020 that I am looking forward to! In January 2020 I am co-hosting bowling with CP Teens which is mental just last January I went to the same event as a ‘CP Teen’ myself so to be co-hosting this event as an ambassador just a year on is beyond anything I would have thought. Thank you to Ellie and the rest of the crew at CP Teens for having me as part of the team I really am honoured! Not only do I love CP Teens so does my family at the sponsored wobble in May I brought quite a big crew and we all loved it so much it was one of the best days of the year, my family love this charity so much and will go to great lengths to help raise money for it as long as we can. 

 

Thank you for an amazing year CP Teens and thank you to all those that read and continue to read my blogs on both CP Teens and Not So Terrible Palsy.

 

I wish you all the best for 2020, 

Georgia
@GeorgiaVineOT (new Twitter handle-very official, lol)
@georgiavine4213

Maddy's Entry

December 09, 2019

Hi Everyone,

So on Thursday 24th October I graduated from University – I was so nervous! In July I had been asked to be the Student Speaker and I had said yes! Thursday came around quickly and I was feeling nervous and excited. The week before I had been practicing my speech on friends and neighbours and rehearsing it when I could. 

 

Thursday was an early start as we had to be in Plymouth by 9:30am, I arrived at the Guildhall and registered where I got the tickets for my parents and friends that we had invited to come. I then went to be fitted with my gown and I was able to have a quick look inside the hall so that I could see where I was sitting on the stage and test out the walk to the lectern and back – this was helpful as we found that the stage had a bump in the middle of it so I could practise avoiding it!

 

After that, we went to have photographs taken. By 10:15, I made my way over the road with my guests to the VIP Room to chat with the VC, lecturers and the Student Union President before we all went over to the Guildhall. At 10:50 my guests left to be seated in the Guildhall with all the other guests and students (my parents got front row seats!) and then it was the stage party’s turn at 11:00. We formed a line and were ready to go when a member of staff in marketing who was in charge of getting us all ready, received a message from a member staff in the Guildhall to say the fire alarm had gone off! So for the next 5 minutes we were hanging around waiting to see what was going to happen – thankfully false alarm but my nervousness was getting worse with the wait!

 

We received the all clear that everything was ok and we set off to the Guildhall. Walking into the hall was very nerve-racking with everyone looking at you, plus I hadn’t told any students that I was Student Speaker. We walked up on stage and took our seats. The VC opened the ceremony and the first half of students went up on stage to collect their awards, this included me. Next was a presentation of an Honorary Degree to Honorary Graduate Debra Searle. Debra is an Atlantic rower, television presenter and author – and she used to go to the school I went to! Her speech was amazing as she told her story of rowing the Atlantic alone. The second half of students went up on stage to collect their awards and then some lecturers were called up for receiving awards which included my tutor for getting his Doctorate. 

 

Then it was my turn to speak.

 

They announced me and I was so nervous – I got up and after nodding at the VC, I made my way to the lectern (avoiding the bump in the floor!) After being so nervous throughout the whole ceremony because I was the 2nd to last person to speak, I actually loved doing my speech! I’m not going to lie – I was shaking the whole way through and I was little nervous but I soon became confident and I enjoyed telling people about my 'journey'.

 

After my speech, it became a blur. I walked back across the stage to my seat and as I did, I saw the lecturers stand up! I then saw all the guests and students do the same - I was the first Student Speaker ever to receive a standing ovation! I felt like crying! I actually had to sit down because my legs were shaking so much!! Once the clapping and whistling had died down, the VC went to the lectern to close the ceremony.

 

After the ceremony I had students, parents and lecturers (some who I didn’t know) coming up to me to congratulate me on an amazing speech, saying that they cried and that I should be a motivational speaker (maybe I need to think about changing my career choice). I had professional photographs taken with the VC, my tutor and the Student Union President and then had lunch with the VIPs. 

 

In the evening we went out for dinner and the next day I had gone viral on Twitter, been approached by the BBC for an interview and been approached by a school to go in and speak next March – more exciting things to come hopefully!

 

I thank everyone at Marjon for giving me the confidence to be the Student Speaker. I hope you all enjoy the video - you might need tissues! https://www.facebook.com/MarjonUni/videos/1010353799309065/

 

Thank you,

 

Maddy x

Cat's Entry

November 29, 2019

Hi guys! 

 

This month has been an interesting one for me! The beginning of the month saw a return to the CP Teens Ball that I was so excited to attend with my mum and meet up with so many people I often only get to see once a year! It was a fantastic evening with lovely food and some great 90s throwbacks on the dance floor! I love attending this ball, and it’s something my mum and I look forward annually together! I’m always happy to see everyone so well and finally put faces to names I’ve spoken to on the internet over the years.

 

I’m not sure if any are aware, but I’ve worked retail for the past 6 years - week after week. I had unfortunately become so familiar with my role that I was becoming pretty bored with my role. Therefore, back in September I applied and interviewed to be the new supervisor at the weekend!  3 weeks ago I had gotten the news I’d been both apprehensive and crossing my fingers for - I had aced the interview and was indeed the new supervisor on a Saturday! I’m thrilled to have the chance to do something different and I’m pleased to say it’s been going so  well thus for! The funny thing about my new role is my name badge, officially it reads “Cat Supervisor" which makes it seem like I supervise actual cats. In the past I’ve struggled to find my place and I’ve felt “held back" by my employers specifically because they have not seen past my Cerebral Palsy or valued my abilities so I’m excited to prove them wrong and support my colleagues. After all I’m quite used to asking my colleagues for assistance with certain duties on the job, such as folding or repackaging items.

In other news my modelling career seems to be going quite well. I got to complete my ultimate dream of a photoshoot with OWLS. Their names were Thor, the Eagle Owl and Luna the Barn Owl. This shoot has such a significance to me. I never met my grandmother, but she collected owls unbeknownst to me. It was such a shock when my dad told me as both my cousin and I had a large owl collection too. I also got some amazing news about this shoot - the photographer is going to get the images published and I’m so so excited! These images give me so much confidence and I feel positive about myself when I see them being appreciated by other people! 

 

I'm also feeling better too, after restarting my anti depressants that also have muscle relaxants. I know medication is not the answer for everyone but I’ve found they have really helped me get back to my normal self.

December is very nearly upon us and I’ll be turning 23. I’m going to try my best to make this my best year yet! I think this is my last entry of the year so I wanted to wish everyone my best and hope they move into the new year in high spirits. Things are looking up!

 

Lots of love,

Cat =^-^=

Abbie's Entry

November 01, 2019

One of my PA's has been sharing a blog with me that she has recently started following. It is called Gin & Lemonade and is written by Lorna - a young Mum with CP.  Lorna writes about a whole host of topics but one that has struck a chord with me recently is access.  Lorna does not mind being in a wheelchair.  What she minds is how poor access is.  The story of the teacher carrying a student in his backpack for a field trip has gone viral.  Lorna feels that we seemed to have missed the point in praising the teacher when we should be finding and highlighting wheelchair accessible nature trails. The young person involved is fine about the story going viral but Lorna makes the more serious point that disabled people are more than props for someone’s good deeds. 

 

Like Lorna I have my wheels. My wheels are not the problem.  My CP is not the problem.  My issues are inaccessible buildings and people not tuning in to what accessible means.  I am disabled by my environment.

 

From Service Stations which I can’t get my wheels into could you not move stuff so I can get my wheels in?  Sometimes it really is that simple.

 

Or how about before you advertise your Farmhouse as fully accessible how about trying it out with lots of disabled people to ensure that it really meets our needs.  We had done our research on a property to try this year for our holiday but the layout was tricky at best and unsafe at worst with me needing to go out onto a hairpin bend on the road to access the garden and raised pool.  The floodlit photo on the website did not show the lip!

 

I should have realised that things were not going to be easy from the get go for this trip.  Mum could not find her Passport on the Saturday with us due to leave in the early hours of the morning on Monday.  By Sunday afternoon having turned the house upside down it was clear that this Passport was planning on staying hidden and it was going to be too difficult to postpone given the way that my PA's were all booked up to be flying in and out over the next 3 weeks.

 

So I waved Mum goodbye and set off with some crazy weather for company all the way down to my favourite hotel and my preferred room which had been remodeled since my last stay and yes, you guessed it it was no longer accessible.  Delicious food helped to make up for the disappointment.

 

We then moved over to the Farmhouse only to find that it was not going to be suitable so immediately started to try and find what else might be available.  All in all that first week was spent packing and repacking and a steady stream of conversations and negotiations in an attempt to salvage the trip.  

 

So a week after I got to Spain, Mum arrived and we were back at the hotel for a week. All in all that first week was not very restful so the holiday only really got started once Mum arrived.  At the end of that week we moved again to an apartment in the Square.  Best fit given the circumstances.

I got back at the end of September and have eased myself back into training from home having made the decision not to trek up to Lee Valley twice a week.  I have my new gym all set up at home and my PT is now coming across and with the days drawing in it feels like a good way to be heading into the Winter months.

 

In addition to the gym, great progress has been made on the murals in my bedroom.  It was hard work getting the brief together but I have got exactly what I wanted.  The only thing is having seen how great it looks has inspired me and I want more so that my whole bedroom is filled with Disney and Harry Potter characters.  I also have my Sensory Room to look forward to being installed at the end of November.  Feels like it has been a long time coming but I appreciate that it was important to get the plans right.  I know that it is going to provide me with the most important chill out space where I can have some privacy at last.

 

It was my Birthday this week and I started my celebrations with a surprise visit to Leonardslee Lakes and Gardens where one of my team has gone to become a Wine Ambassador.  I thoroughly enjoyed a Cheese and Wine pairing experience followed by a bottle of bubbles that Emma opened with a Sabre at the table!  This was followed by a visit to the Doll’s House Exhibition which was impressive.  I had taken my camera as I’m doing a Photography course at College but drizzly weather meant we spent only a little time in the garden.

 

On the Sunday I had a Surprise Party.  My PA's had worked to turn the outside area into a Big Top and we had a singalong to The Greatest Showman.  My afternoon began with a wonderful meal with my family but I made sure to save room for some Tapas during the film!

 

Monday was the actual day and I opened cards and presents first thing before heading up to London for a bit of retail therapy and a family meal.

Now having started this blog by saying how disappointing access often is I want to end it by telling you how pleasantly surprised I have been by the College experience.  I am delighted to report that the faculty have already worked with a quadriplegic student and currently have a student with access requirements.  As a result the Risk Assessments and Emergency Evacuation procedures are all in place and the College have even offered to train my PA's on the EvacuChair!  

 

In fact I have been so inspired that I went to an Open Day at the College to see what options might be available for Art.  Watch this space for what I find.

Gavin's Entry

October 17, 2019

Hi everyone,

I hope you are all well. Firstly I want to start off this blog by wishing those who are going to the CP Teens Ball in a few weeks time a wonderful night. I have no doubt you will all have an amazing time. Unfortunately I am unable to make it this year as I am preparing for the World Para Athletics Championships in Dubai later on in November. I am gutted to be missing the ball this year but sadly you can't be in two places at once. I wish that was possible though - that would be so cool!

 

Earlier this year, I promised that I would do a blog post about my recent trip to Romania with the boys' brigade when I returned. So for this blog, I thought I would share a few paragraphs I have written about the trip and the work we do in Romania:

 

Having visited previously in 2017, I was delighted to have the opportunity to make the trip to Romania and visit the Rhema Foundation for the 2nd time. I couldn't wait to return. One of the main reasons the boys' brigade continues to visit the foundation is to spend time with the residents. Over the years, a special bond has been created between the residents and the company, so much so we now consider each other to be like family. All the residents are dependent on the foundation to support them and unfortunately have very little or no contact with their family. Also, during our last trip, we learned that we are the only organisation to have visited multiple times. With this in mind, we try and spend as much time as possible with them during our trip. The disco and karaoke on the final night was a definite highlight.

 

As well as spending time with the residents, we worked with children from local communities and helped to run the foundation’s daycare sessions. Most of the children that attend the sessions come from gypsy backgrounds. These daycare sessions are vital as they not only provide a safe space to play and also they ensure the children receive an education they otherwise likely wouldn’t get due to the low status of gypsies in Romania. It was great to see the kids running around and having fun. They fully embraced themselves in the activities and challenges we provided, it didn’t matter whether it was making sculptures out of play dough or singing (and doing the actions) to “Baby Shark”. They even made sure they outdid us each time!

 

The first time I went to Romania, I really realised the importance of the work the Rhema Foundation does and going for a second time only reinforced this. Their work really is invaluable. The foundation has helped changed so many lives.

 

It was an incredible week. I am already looking forward to when I next visit, hopefully in 2021.

 

Gavin

Georgia's Entry

October 03, 2019

When I first started playing the piano 9 years ago, I did not think that an instrument could have such a significant impact on my life.

 

I was influenced to get into the piano by watching my sister play as she had started lessons 18 months earlier, but I never thought I’d be able to do it and I just ruled it because of my fine motor difficulty due to my Cerebral Palsy.  Then in 2009, my sister was involved in a piano concert of which her piano teacher kindly asked me to be involved, I was a bit anxious as all I’d ever played was ‘Twinkle Twinkle’, however her piano teacher suggested I followed the lights which seemed perfect!

 

After doing this amazing show, I decided that in the next show I wanted to play the piano for real and nothing or no one was going to stop me! I started off basic as it was very hard to play using both hands, I am right-handed and whenever I’m using my right hand my left hand tends to wander off. I had a lot of work coming my way, but I was up for the challenge.  Over time I have got better at the piano, and not only this but it has been a great source of occupational therapy for myself as since I started playing my fine motor skills have improved. It challenges parts of my brain that need to be challenged and pushed as by playing the piano I must work against my brain. I admit I’m not the best pianist in the world, but this doesn’t matter all the matters is that I enjoy it.

 

Playing the piano has given me many opportunities I uploaded a video of myself playing for World Cerebral Palsy Day, in October 2018, of which I was taken back by how many views I managed to get! So now I am using the piano in a positive way.  I never thought that when I started 9 years ago, that it would help me gain confidence in not just being a young-women but being a young-women with a disability. Due to my disability, I have a speech impairment and some people find it hard to understand what I am saying so playing the piano gives me the ability to present myself in a clear way without presenting barriers and to have this ability makes me so thankful to my amazing piano teacher!

 

You can achieve anything if you put your mind to it (sorry for the cliché) however this is what happened in my case!

 

Thank you for reading,

 

Georgia Vine

@georgiaannv 

@georgiavine4213

Josh's Entry

September 19, 2019

Hi everyone,

Hope you all had an amazing summer & enjoying being back at School, College or University. I thought I’d use this blog post to make an announcement, I have decided to step down as an Ambassador for CP Teens UK after 5 & half years. This wasn’t an easy decision for me as I am so grateful to be involved in such an amazing charity that does amazing things, however I feel it is the right time to take a step back as I feel I can’t give enough time with my work & I will be getting more involved in a couple of mental health charities. 

CP Teens has made me become more confident in myself and with my disability, without CP Teens I don’t think I would be where I’m at today in my personal life & my work life.

I would like to share my story of what CP Teens UK has done for me, As a child I was quite outgoing & never afraid to get involved in social activities, then when I went to High School I was constantly in & out of hospital through out my teenage years & I started getting social anxiety & going into a shell, I would never go out & just spent all my time on my own as I felt my Cerebral Palsy was a burden on everyone around me as I couldn’t get involved in much my friends were doing, It was like nobody could understand how I was feeling & I struggled so much with loneliness. I started getting involved in radio to try & help but there was still a lot of struggles I never knew what to do, then doing my own radio shows I got twitter to help with promotion of my shows, I started getting a following so decided to use the platform to talk about me & my Cerebral Palsy, this would turn out to be the best decision I would make.

Through talking about my Cerebral Palsy on Twitter I came across Ellie & she was telling me about CP Teens UK and her plans for it & invited me to become an Ambassador, which obviously I said I would love to be. CP Teens UK helped me so much, finding a group of people who could understand me & know how I’m feeling. Being involved in this charity has been great & I have met so many great people & hopefully helped loads of people too. 

Looking ahead to the future I am going to be getting more involved in a couple of mental health charities as I have struggled with mental health for a number of years & it has come to a stage in my life where I feel good about myself & enjoying life so thought I can help more young people who might be struggle & give them the support they need. 

I will continue to follow & support CP Teens UK, wherever I can & wish everybody involved in the charity the best of luck & if anybody needs someone to talk to about anything feel free to get in touch & I am always willing to talk with people.

Thank you to every single person who have helped me so much over the years I will always be forever grateful.

Josh

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© CP Teens UK 2020.

Registered charity - 1172105

 

Website by Ellie Simpson.

CP Teens UK is committed to the safeguarding of children & vulnerable adults.

DISCLAIMER: This organisation & website is run by people with Cerebral Palsy, for people with Cerebral Palsy (and other disabilities). No medical experts or professionals on Cerebral Palsy, or any other disability, were involved in the making of this website.

CP Teens UK

Office 7

The Community HUB

East Stand

Proact Stadium

Sheffield Road

Chesterfield

S41 8NZ

office@cpteensuk.org / ellie@cpteensuk.org